Good News: Watchful Waiting Starts Today!

We just got back from the oncologist who told us that he wants to start watchful waiting. So for now its over. Next action is a CT scan in 3 months…. IN THREE MONTHS!!! What do I do now?

Here is the video I made just after we heard it.

We can hardly believe it and are in a bit of shock. A good one, but still in shock. So much has happened, so many good things and so many nasty things. And now they tell us that this part of the journey is over. That we can get out and stretch our legs. So weird. Tomorrow I will understand this better 😎 As usual it takes me a day to ‘get’ news.

Theo shrunk from 21 x 59 x 39 mm to 17 x 54 x 36 mm.

Here is the scan they did, you wont see much unless you are a radiologist but still it’s cool to see 😎

For the fans here is the write up in Dutch from the radiologist:

CT Thorax

klinische informatie:
Follow-up mediastinaal seminoma +2 longafwijkingen.
Regressie?

CT-thorax:
CT scan van thorax volgens het longtumor protocol. Onderzoek vergeleken met 12/09/2008.

Bekende massa in het anterieure mediastinum heeft een AP-diameter 17 mm, voorheen 21 mm (serie 1 ima 37). In het coronale vlak meet de massa 36 x 54 mm, voorheen gemeten 59 x 39 mm (coronaal ima 30).
Lymfklier rechts paratracheaal 12 mm (ima 14), conform voorgaande twee scans. Verder mediastinaal meerdere opvallende klieren, qua korte as diameter niet pathologisch vergrote echter wel groter dan op voorgaande CT scan.
Gynaecomastie beiderzijds (ima 46) op voorgaande scan was hier slechts lichte aanzet toe zichtbaar.
De nodulaire verdichtingen zichtbaar op de fissuur major meten 7 respectievelijk 3 mm, voorheen 6 respectievelijk 2 mm, gezien meetfout beeld ongewijzigd.
Geringe atelectase van posterieur gelegen longdelen (ima 41 axiaal, 88 sagittaal).

Normaal beeld van bovenbuiksorganen.
Intacte ossale structuren.

Conclusie:
De massa in het anterieure mediastinum is kleiner dan op voorgaande scan.
Een lymfklier rechts paratracheaal met korte as diameter 12 mm, conform voorgaande scans.
Longlaesies in essentie ongewijzigd.
Gynaecomastie beiderzijds.

[try not to make your own conclusions from this if you don’t understand]

So he is still there. Also I still have some lesions on my lungs. My onc also mailed Einhorn inform and to make sure we are on the right track ( UPDATE: Einhorn agreed with the new path). The big journey is definitely not over. But the main first part is. In three months I’ll go back for another scan to see how it is then.

In the coming months I’ll work on getting myself back on the road. This afternoon I have an appointment with my GP for some minor ailments due to the chemo and to get some advice to efficiently get back on track.

Thanks for all your support. I really helps!

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