Now that I have my PET scan results and the SUV values I can compare it to what the specialists say.
I have 5 area’s which lit up positive:
RECHTER LONG NODUS 1.SUV 1.43
LINKS PARAORTAAL 1.SUV 4.22
PARATRCH LINKS 1.SUV 4.66
HOOG PARATRACH 1.SUV 3.66
VOORSTE MEDIAST 1.SUV 3.54
The names correspond with the image names and what the AMC designated them. Also I added the SUV values in the end.
Here are the visuals:
The area’s that the AMC’s nuclear radiologist identified are in the cross hairs. What they are is unsure. I do know that most are leftovers from Theo. Click on the Slideshare logo to go the a full screen capable version.
Theo has been ‘cut to pieces’ by the chemo. There is a crater like area between my lungs where tissue lights up. This ‘lighting up’ can be scar tissue being absorbed or active cancer. What it is exactly is the key question. The image “RECHTER LONG NODUS 1.SUV 1.43” is the lung spot. My dutch Onc wants to rule out that that one isn’t related to Theo. That is why we are doing the biospy.
It is an art and not a science to interpret the PET scan results for further treatment. There is little research for my type of cancer. As said I believe that Dr. Einhorn is the best artist. The little research there is says that a negative PET scan result indicates a low likelihood of persistent cancer after chemo therapy. However a positive PET scan does not translate into a similar high probability of persistent cancer.
Matt set the bar at an SUV value of 4. His case is not the same as mine so I don’t know if I can do the same. Yet I do now that two spots are higher the 4 SUV. This is why a specialist with experience should look at this.
Need more detail? Here is the Flickr set of the PET data.
Tomorrow I’ll know when the biospy is. And yes, be sure to find me here writing about it😎