The day before I got the good news I was at the Healthcare 2.0 Event in Nijmegen to share the story of Maartensjourney for the first time. I was asked to do this by Lucien Engelen who organized the event. The way how I share my cancer exploits via my blog is apparently unique in the world. Not all patients have a blog and share everything online.
It was weird plowing through all my old tweets, posts and video’s. @michielb made a special version of the Waves of Love for the presentation. A stand alone version from the day i got cancer to the last chemo day.
I remember thinking of the concept to show other people how twitter helps me. For those who don’t know what it is: It shows my twitter messages on the left and the reactions on te right. The best version has the oldest message on top and works itself down with time. Going through all the first part of the Waves of Love really took me back in time. Heavy.
Although I love being on stage this story was a bit different. It was not a concept of pitch I was doing. It was my own story.
Key message was that being transparent supported me, helped others and improved my treatment.
Through my transparency people with the same form of cancer found me and helped my to uptodate and specific treatment information. Together with my oncologist I was able to filter this and act on it. Together with my oncologist i co-directed my treatment.
Here are the slides (also in Dutch)
The event was great, I also met good people like Berci who has a amazing blog about Healthcare 2.0. His take is that E-patients, of which I am an example, will change the future of Medicine. He made this short video interview: