So finally the doctor called, an hour later then said. He confirms the diagnosis. My abdominal scan didn’t show anything of interest. And my blood marks from the test last Friday confirm the seminoma diagnosis.
Big news is that treatment starts on Wednesday, not Thursday or Friday. That sucks, some how I wasn’t prepared for that. But then again, better earlier then later, it will all be over sooner.
My mood today isn’t that good. This Wednesday news didn’t help. Yet what was worse is that my CT scan didn’t work the first time around and I had to do it twice. We were there for 5 hours in total. Looking back 3 things bothered me:
- They didn’t tell me they had to do an infusion. I don’t like being injected any more. Especially if they don’t tell me before hand. I had enough surprises all ready lately, tell me whats coming up.
- Lying there in the scanner I noticed in their actions that something went wrong. But they didn’t tell me right away. I didn’t know if it was the procedure which went wrong or if the outcome was bad.
That was a stress moment. Hightend by the fact that the same radiologist came by who told me a week and a half a ago that there was some thing in my chest xray which started this journey. Anyway, the same guy said that he didn’t know what was going on…. Geeee that helps me NOT. After a bit a nice nurse told me me it was a procedure issue not me. - The time it all took, that they in the end did 2 infusions and I had to drink the juckey stuff twice.
Its gonna be an interesting journey. Today was the first time my resiliance and patiece was tested. That will happen much more the coming months.
This afternoon or tomorrow morning a nurse will call with the details concerning me going into the hospital. In the meantime I will start getting more stuff for the HPP.
Lieve Maarten,
Ik hoor net de vrouw naast me tegen haar vriendin zeggen dat je altijd positief moet blijven denken. Toevallige opmerking in het voorbijgaan, maar oh zo toepasselijk. Hoe moeilijk het soms ook is…
Ik heb zelf laatst in het ziekenhuis hele tactloze zusters om me heen gehad, en dat was vreselijk, maar vergeet niet dat een heleboel andere mensen er wel helemaal voor je zijn. Virtueel en IRL.
Ik denk aan jou en Lori,
Kus ,
Marloes
@marlooz
Brrr infusions.
But I have to say, I sometimes almost pass out during Grace Anatomy, and No I do not really watch that show…
Sounds like good news, but the treatment a bit quick.
I could try to smuggle freddy into the hospital if you like?
Just add him to the HPP!
Groeten Bas
Hi Lens,
Good luck with the treatment Wednesday. First step to recovery, hopefully it won’t be too bad.. reading your hpp you certainly seem well prepared. My tip, set up some good playlists.. (maybe some DJ-sets from Lowlands 2006 for good vibes? -> http://3voor12.vpro.nl/speler/ondemand/29695776 )
Sterkte,
Jelle
yep i know, time in a hospital has it’s own life.
Jeetje man, heavy shit allemaal. Heel, heel, heel veel sterkte de komende periode!!!
Maarten,
een ‘oeff!’ lijkt me wel op zijn plaats hier.
Woensdag lijkt me een beetje als de rapids instappen ….en dan maar zien hoe het loopt en hoeveel water je gaat binnenkrijgen. De rivier is echter bevaarbaar.
May various forces be with you!
bas
Het gaat allemaal wel vreselijk snel inderdaad. Nog twee keer slapen en je zit er middenin. En dan wordt de eerste klap aan Theo uitgedeeld, dat is wel een ‘hoe eerder hoe beter’-ding dunkt me. De trein gaat rijden en je kunt er niet af. Ik hoop dat het personeel aan boord van een beetje goeie kwaliteit is. En anders moet je het ze maar gewoon laten weten. Jij bent de klant.
May your force be with you!
Maarten, I feel I know you a little bit through Doc Searls.
I once read an interview with someone who helped arrange cancer treatments of various types. When asked which ones worked best, she said that what seemed to matter most was making the decision to fight for your life.
You are young and strong and full of life. Fight fiercely, live long and prosper.
Ugh, sorry to hear about the repeat procedure — that sounds like a huge drag. Really glad the scan was clear though! A friend of mine had a radiologist give her what seemed to be really radically bad news after looking at her mammogram — and turned out to be wrong, and the days afterward of waiting for the MRI, waiting for the RESULTS of the MRI, were nightmarish. The radiologist freaked her out way beyond reason — totally unprofessional!
By the way, all the Dutch writing above looks so weird and nonsensical to me. I love it. I am now going to invent a Dutch nonsense sentence of my own: Uit twee jaarden gloost mit gaarble gook. Echt vlidden poor, sloostich?
Did I accidentally invent any real words? ha ha! (I’m not making fun. I love Dutch — I especially love hearing Lori speak it. 20 years ago, I could never have imagined it!)
Gosartje, vergelijk die chemo gewoon met een vrouw. Je laat haar gewoon over je heen gaan en je bent sneller klaar dan je denkt
Maarten, wat een narigheid en gedoe. Je wordt geleefd… Zware tijden. Hopelijk krijg je een beetje de controle die je nodig hebt binnen de mogelijkheden.
Heel veel kracht en sterkte bij de komende periode van behandelingen!
@iskandr
Lens,
Your going to do just fine. This is the first step to wellness. We are all here for you every step of the way(even if we are accross a very big ocean!) . Keep all of your wit and humor with you – you will need it at times. When you can’t find it…I am sure someone will show you the way.
We are very proud of you for handling this the way you have. Keep up the positive roll…love the photos to match the topic – perfect! Tim and I love you both so very much…Sherman says a big wet slobbery kiss hello! And Congo was just squawking, I think she says hello too!
By the way – I love this blog, it helps us stay close to you.
Luv Luv! Connie